More of the same............... to +84

Sorry for the big gap - but it's getting harder to find things to tell you about here in Camp Lucky. Saffy remains happy and healthy. As yet we have no solution to the continued problem with the red cell count but all medical personnel remain remarkably calm and we are doing our best to mimic that state. In fairness, it's not that hard because Saff looks and acts like a girl thats never been ill in her life.

On our most recent trip to GOSH - last week - the BMT consultant said all that worried him about Saff's tumbling Hb levels was his inability to pinpoint the precise cause. He thought her residual A antibodies attacking the donor AB marrow was the most likely explanation. He felt the immature marrow theory would also lead to reduced white cell counts and this hasn't been the case. What is an undisputed fact is that a significant number of post-transplant children suffer from this problem, and it almost invariably corrects itself, regardless of why it exists in the first place! She hasn't had a transfusion for over two weeks now and although her Hb level is low it's taken longer to fall than usual - so fingers crossed.

I have to confess that all this staying at home has given me an acute attack of cabin fever - I find myself looking forward to shopping trips - and I don't even mean for clothes! Still, all in a good cause.

Reuben, Pokemon master supreme, top Hogwart's wizard and family Top Trumps champion, continues life unconcerned by the endless medical interventions needed for him and his little sister - thank goodness.

Thanks to all of you still following our fortunate progress - I'll try and update you a little sooner next time.

Take care

Sonja